SeizeControl Observational Panel

Generated: 2026-07-21T15:28:42.965Z

Evidence standard: Research-grade observational description (not medical advice)

Methods (summary)

SeizeControl Observational Panel

Class B observational research using consented/default-share SeizeControl research profiles.

Purpose

Describe the aggregate profile of people using SeizeControl who share research data,

to inform FND Connect community reports without individual-level disclosure.

Population

SeizeControl users with research sharing enabled (opt-out model per product terms).

Unit of analysis

One row per participant (pseudonymised).

Limitations

Self-selected digital cohort; not representative of all people with FND.

Default opt-in means some users may not have actively engaged with research settings.

Analysis plan

Analysis plan v1 (pre-specified descriptive)

1. Count of participants in snapshot.

2. Distribution of primary condition (banded).

3. Top co-occurring condition categories (suppressed if n < min_cell_size).

4. Contactable-for-research share (aggregate only).

No inferential tests in v1. All findings labelled observational / exploratory as appropriate.

Snapshot

• Dataset snapshot: `9e585eba-e5d1-4491-95ff-d7973437fd40` (v3)
• Rows: 101 (unit: participant)
• Checksum: `3b165602b6f2a7b564e057c2086cb8a1663709ff9b39106b5ffbc7a54292f541`
• Analysis run: `81f8d636-563c-4165-b78a-c8d8c5c735a6`
• Analysis checksum: `3340e6fa247d2e3664857dc1fe28cfc23a14c2927e721ae0dbeaa965bef2ae35`
• Min cell size: 5

Findings

1. 7.9% are open to being contacted about research

• Evidence label: Observational finding
• Disclosure: ok
• Estimate: 7.9%
• Fraction: 8 / 101

8 of 101 participants have research-contact preference enabled.

Contact preference is optional and may change. Not a recruitment list.

2. FND is the most common primary condition label (49.5%)

• Evidence label: Exploratory finding
• Disclosure: ok
• Estimate: 49.5%
• Fraction: 50 / 101

Among participants with a snapshot row, 49.5% are labelled FND (n=50 of 101).

Labels are self-reported in SeizeControl. Categories may be incomplete. Not diagnostic.

3. Snapshot includes 101 research-sharing participants

• Evidence label: Observational finding
• Disclosure: ok
• Estimate: 101 participants
• Fraction: 101 / 101

The frozen dataset contains 101 pseudonymised participants from SeizeControl research sharing.

Self-selected digital cohort. Not representative of all people with FND. Observational only — not medical advice.

4. 29.7% had at least one logged episode in 90 days

• Evidence label: Observational finding
• Disclosure: ok
• Estimate: 29.7%
• Fraction: 30 / 101

30 of 101 participants logged at least one episode in the prior 90 days (SeizeControl).

Logging behaviour is not disease prevalence. Users log at different rates.

5. 0% completed the community check-in

• Evidence label: Observational finding
• Disclosure: ok
• Estimate: 0%
• Fraction: 0 / 101

0 of 101 snapshot participants have a submitted community check-in.

Optional survey; non-response is informative but not missing-at-random.

Limitations

• Self-selected SeizeControl users; not population-representative.
• Research sharing may be default-on; not all users actively confirmed.
• Co-occurring conditions are free-form and mapped heuristically to categories.
• Small cells are suppressed, not shown as zero.

Lineage

research_finding → research_analysis_run → research_dataset_snapshot → research_cohort_snapshot → source:seizecontrol_research_opt_in

Full lineage JSON checksum inputs: snapshot 3b165602b6f2a7b564e057c2086cb8a1663709ff9b39106b5ffbc7a54292f541, run 3340e6fa247d2e3664857dc1fe28cfc23a14c2927e721ae0dbeaa965bef2ae35.

*FND CONNECT CIC Research Hub — Phase 4 pipeline*