01
Navigating new life!
My days are vastly different apart from the fact I pretty much spend a lot of time day to day in bed due to pain and weakness. I had to give up work in May 2026
Read Emily’s storyFND Stories · Our community, in our own words
This is us.
These are our stories.
The messy days. The small wins. The people beside us. Honest life with FND, told by the people living it.
24 stories shared — and growing.
Different symptoms.
Different journeys.
One community.
Voices, not case studies
Meet the people
behind FND.
No polished version. No need to make it inspirational. Just honest experiences that help the next person feel less alone.
01
02
My story with fnd
Day to day it’s hard working is the main problem when I’m at work my brain can’t cope has I’m doing 10 different things at once which triggers seizures I can se
Read Nicola Hitchings’s story
03
Me,fnd and family
Before my fnd diagnosis i worked as a Bricklayer for 25 year's in the construction industry before moving on to another venture in maintenance manager in a fast
Read Paul’s story
04
Learning to live with & manage my FND/CFS
I was suffering from cluster headaches/migraines, involuntary twitching/jerking which developed into non epileptic attack disorder, periods of chronic fatigue,
Read Lynn Floyd’s story
05
I Didn't Have FND. Then Everything Changed.
Part Two: From the person who catches them, to the person who needs catching. On 27 July 2026, I published a story called I Didn't Have FND, But It Rewired My W
Read Matthew Gerdes-Hansen’s story
06
Life changed, but I’m still me
Living with FND can be unpredictable. Some days I can manage more, while other days even basic things can feel difficult. My symptoms affect my mobility, cause
Read Jamie Attwood’s story
07
My journey with fnd
3 years on with fnd diagnosis I have good days and bad days. Seizures are still very much a part of my life. On good days I may have one or two seizures but on
Read Abigail Spicer’s story
08
Life is different, but still good.
The symptoms I don’t have are: seizures, fainting and incontinence. I have all the others, fatigue is the one that really gets to me though. I would like this
Read their story
09
Life isn’t over just different now
Day to day is really hard. I miss the life I had before. I often have seizures. I am in a wheelchair full time. I have tremors frequently. My legs randomly stop
Read Tiffany Robinson’s story
10
Living and loving life despite FND
My Story My story began 41 years ago. Saying that out loud makes me feel old, but by sharing the "why" and "how" of my journey, I hope to give others hope. It
Read Kimmy’s story
11
Living with FND and CHRONIC FATIGUE
The day to day journey is a struggle tbf. From when I awake I'm exhausted, heavy headed and when I do step out of bed I'm extremely wobbly amd far from function
Read Lee’s story
12
My story. From losing control to finding my passion.
My Story — From Losing Control to Finding My Passion. My business is more than just candles and fashion. It’s a story of resilience, hope and refusing to give
Read Suzy h’s story
13
My journey with severe FND since childhood
FND has had a life changing impact on my life. The emotional scars of becoming disabled as a 13 year old are still felt to this day. It’s been a long hard battl
Read Liam Virgo’s story
14
FND survivors
I have written a diary of each day and each system for me to learn and understand what my body is telling me it’s challenging some days but it does get easier t
Read their story
15
And boom,FND made me a warrior!
Every day can be very different, I can wake up with just pain and tremors, brain fog and then the aura hits and the seizures hit for the daily finale! It's even
Read Ashleigh nelson’s story
16
I was a healthy teenager then it all changed.
My day to day life is a struggle. Now at 18 years old I am still adjusting and making new adaptations to my life. On my good days I can make my own food and was
Read Mia’s story
17
Fnd warrior
As fnd is illness that not well covered hard sometimes people see but things start badly in early 2026 as lose balance and foot drop start make me think somethi
Read John’s story
18
I didn't have FND — but it rewired my whole life
Until about two and a half years ago, I had never heard of Functional Neurological Disorder (FND). I didn’t have it. I still don’t. And somehow it rewired my wh
Read Matthew’s story
19
From a Rugby player to a wheel chair user
The day-to-day reality of living with FND (Functional Neurological Disorder). Not long ago I was a 6’1”, 21-stone prop forward, training six days a week. Today
Read Rhys O'Sullivan’s story
20
My FND Journey so far
Hi all, My name is Liam Jay Squires. I’m 30 and have had several health conditions from birth. These include spina bifida and neuropathic bladder, and, since 20
Read Liam Jay Squires’s story
21
Kath 2.0
Each day is a bit of a lottery. Some days I can get out of bed and know the day will be reasonably good. It can change in a heartbeat as the day goes ahead. So
Read Kate on the wonk’s story
22
From carer to cared for
Since the 10th December my right leg has remained paralysed making it difficult to walk. My right arm has weakened significantly and I can not lift it above my
Read Danielle Armstrong’s story
23
I am a nurse and now a patient too!
My Journey with Functional Neurological Disorder (FND) As a nurse, I have spent years caring for people living with Functional Neurological Disorder. I have sup
Read Tricia Hughes’s story
24
Emma's FND Story
I have been living with Functional Neurological Disorder since 2021. Before it all began, there was already a lot happening in my life. I had Covid and became r
Read Emma’s storyWhy these voices matter
You might recognise a symptom. You might recognise a feeling. You might simply feel less alone.
Every story is different. Together they make FND more visible, more understood and harder to dismiss.
Before you share
Your story.
Your choice.
Personal experience belongs to the person who lived it. You decide what to say and how you appear.
What are FND stories on FND Connect?
They are first-person accounts from people affected by Functional Neurological Disorder. Stories are reviewed before publishing and shared to build understanding and reduce isolation — not to diagnose or treat.
How do I share my own FND story?
Create or sign in to a free FND Connect account, open Share your FND story, write with our guided prompts or free-form, optionally add a photo, and submit for review. You can save a draft first.
Can I share anonymously?
Yes. You can choose a display name and whether to publish anonymously. Every story is reviewed before it goes live so you stay in control of what the public sees.
Are these medical case studies?
No. These are personal experiences, not clinical case reports. Always seek personal medical advice from a qualified professional about your own symptoms or treatment.