FND Stories · Our community, in our own words

This is us.
These are our stories.

The messy days. The small wins. The people beside us. Honest life with FND, told by the people living it.

9 stories shared — and growing.

Different symptoms. Different journeys. One community.

Voices, not case studies

Meet the people
behind FND.

No polished version. No need to make it inspirational. Just honest experiences that help the next person feel less alone.

Why these voices matter

You might recognise a symptom. You might recognise a feeling. You might simply feel less alone.

Every story is different. Together they make FND more visible, more understood and harder to dismiss.

There is room for your voice

Your story could be someone else’s first “me too”.

Share as much or as little as feels right. Write in one sitting, save a draft, or come back when you are ready.

Start sharing your story
  • 01Use your name or stay anonymous
  • 02Save a draft and take your time
  • 03Reviewed with care before publishing

Before you share

Your story.
Your choice.

Personal experience belongs to the person who lived it. You decide what to say and how you appear.

What are FND stories on FND Connect?

They are first-person accounts from people affected by Functional Neurological Disorder. Stories are reviewed before publishing and shared to build understanding and reduce isolation — not to diagnose or treat.

How do I share my own FND story?

Create or sign in to a free FND Connect account, open Share your FND story, write with our guided prompts or free-form, optionally add a photo, and submit for review. You can save a draft first.

Can I share anonymously?

Yes. You can choose a display name and whether to publish anonymously. Every story is reviewed before it goes live so you stay in control of what the public sees.

Are these medical case studies?

No. These are personal experiences, not clinical case reports. Always seek personal medical advice from a qualified professional about your own symptoms or treatment.