When it started
I was working full time and loving life. Then I suddenly wasn’t able to walk and in December 2025 days after Christmas I was diagnosed with FND.
What it’s like
Day to day is really hard. I miss the life I had before. I often have seizures. I am in a wheelchair full time. I have tremors frequently. My legs randomly stop working. The worst symptom I guess I have is the chronic pain because I just want to have some sort of relief but I don’t have any. I have gone from working in care to being the cared for. I have started working for Oriflame as a Brand Partner to give me the sense of purpose I needed so much. Emotionally it’s hard to get through each day but I have to because others need me to be available for them and be the best version of me I can be. They are the reason I am so strong and grateful for what FND has given me but also grief what FND has taken from me.
What helps
I have made some amazing friends through having FND on TikTok and have recently been lucky enough to meet some of them in person. Having friends and family around you,even if they don't understand FND, is the biggest blessing. I have always loved being outdoors so to still be able to go outdoors and do stuff really helps because it’s a part of me that hasn’t been taken away from me and it’s part of my old life I can continue to do.
A message for others
You can do this. You will get gaslighted by professional people but you are the expert in your body not them so keep fighting for your own survival. Reach out to those around you because those that care will stick by you and those that don’t will walk away. Your life ain’t over it’s just taken a different path.
Thank you for reading
Tiffany Robinson
