How can journalists contact FND Connect?

Email hello@fndconnect.org.uk or use the press form at https://fndconnect.org.uk/contact/?topic=media

Media deck · Press kit · Functional Neurological Disorder

The UK FND story journalists can actually tell

Functional Neurological Disorder is real, common, and still widely misunderstood. In 3 months FND Connect has grown from a standing start into a national community — and a live map of sparks spreading around the UK.

Download logos and stills Talk to the press team The story of FND Connect

Just stop being a knob to my mum x — a message received by FND Connect, over a map of FND sparks across the United Kingdom — The line that captures the story. Use it. Credit FND Connect.

The brief, from the next generation

Just stop being a knob to my mum x

A message received by FND Connect. Stigma is not an abstract word. It is a child watching people doubt their mum.

On-screen data · live

What three months of growth looks like

In 3 months, from a standing start to 943 people supported and 912 sparks on the UK map. Figures update from FND Connect systems. They are not social-media estimates.

People supported 943 Community, programmes and practical help · all time

Spark Map lights 912 20 regions glowing · 6 in the last 24 hours

Community accounts 787 FND Connect + SeizeControl · Discord 241

Reach, last 90 days 653,974 Across channels and platforms

The story of FND Connect

A lived-experience CIC. Built in months, not decades.

FND CONNECT CIC started in 2026 because people living with Functional Neurological Disorder were still being disbelieved, left without information, and asked to pay for basic support. The founders live this. The community built the rest.

It started with SeizeControl — free software for logging functional seizures and symptoms, built from lived experience because existing apps assumed epilepsy. In a little over 3 months that software became a CIC, a free Discord community, grant-funded practical help, and a live Spark Map that makes an invisible condition visible.

This is not a legacy charity with a slow comms office. It is a national FND story happening now: people lighting up a map, sharing trusted information, and asking the public to treat FND — and the families around it — with ordinary decency.

Spark Map

The neurological condition, spreading around the UK

Every spark is someone saying they are here. Names stay private. The picture is public. This is what Functional Neurological Disorder looks like when people stop hiding.

Live map. 912 sparks. Open the full experience at fndconnect.org.uk/fnd-map.

Night view of the United Kingdom lit with magenta and gold points, illustrating Functional Neurological Disorder across the country — Editorial still for broadcast and print. Download below.

Data plot of real FND Connect Spark Map points across the United Kingdom, with no names shown — Plotted from live public spark coordinates. No personal data.

Story angles

Six FND stories ready to commission

1. “Just stop being a knob to my mum”

A child’s six-word brief on FND stigma — disbelief, part-time wheelchairs, “but you walked yesterday”. Pair with the Spark Map and a family interview.

2. SeizeControl: the FND app that started a charity

This is where FND Connect began. A free, private tracker for functional seizures, symptoms, medication, wearables and appointment-ready summaries — built because epilepsy apps did not fit FND. The CIC grew around that software. Product page: fndconnect.org.uk/seizecontrol.

3. Rapid growth of a lived-experience CIC

From May 2026 to now: members, Discord, grants, SeizeControl and a national map. How a family-led Community Interest Company filled a gap the system still leaves open.

4. Making an invisible condition visible

The Spark Map is FND plotted in public, without outing anyone. Use the live map or the downloadable still. Link: This is where FND lives.

5. Functional seizures are real seizures

Plain-English explainers, SeizeControl tracking, and why normal scans do not mean someone is faking. Start at What is FND?.

6. Support should not need a bank card

Free community, free information, and a Grant Pot when NHS routes cannot meet a practical need in time. See impact numbers and Fund the FND Gap.

Downloads

Logos, stills and a printable fact sheet

Free for editorial use with credit to FND Connect. Do not recolour the magenta. Do not add “official partner” language without asking.

FND Connect logo

Primary colour logo for print and web. Please keep clear space around the mark.

Download FND-Connect-logo.png

Logo on transparent background

High-resolution infinity mark for dark or light backgrounds.

Download FND-Connect-logo-transparent.png

Logo on dark

Use on navy or black. Do not recolour the magenta.

Download FND-Connect-logo-on-dark.png

Spark Map — FND across the UK

Editorial still: Functional Neurological Disorder made visible around the UK.

Download FND-Spark-Map-UK.jpg

Spark Map data plot

Each point is a real public spark from the live FND Connect map. No names.

Download FND-Spark-Map-data.png

“Just stop being a knob to my mum x”

Shareable still of the message that captures why this work exists.

Download FND-Connect-just-stop-being-a-knob.jpg

SeizeControl logo

Wordmark for the free FND seizure and symptom tracker — where FND Connect started.

Download SeizeControl-logo.png

Press desk

Talk to us

Email [email protected] or send a message with topic “Media or press”. We can arrange interviews with people living with FND, carers, and FND Connect directors.

Open the press contact form

For the copy desk

Quick facts for Functional Neurological Disorder coverage

What is Functional Neurological Disorder?

FND is a genuine neurological condition where the brain’s software — not a stroke, tumour or damaged nerve — produces real symptoms such as functional seizures, weakness, tremor, speech changes, pain and fatigue. Normal tests do not mean the person is faking. Read What is FND?

Is FND rare?

No. FND is one of the most common reasons people are seen in neurology clinics, yet public understanding lags decades behind. That gap is the story.

Who is FND Connect?

FND CONNECT CIC (Company No. 17313147) is a UK Community Interest Company providing free information, community, tools and practical grants for people affected by FND. It is independent of the NHS.

What is SeizeControl?

SeizeControl is FND Connect’s free, private app for logging functional seizures and symptoms, spotting patterns, and taking a clearer picture into clinic. It is where the organisation started. It does not diagnose. Open SeizeControl.

How fast has FND Connect grown?

In 3 months, from a standing start to 943 people supported and 912 sparks on the UK map. Live totals are on this page and on Our impact.

Can I use the logo and Spark Map stills?

Yes for editorial reporting, with credit to FND Connect. Download files above. For advertising, partnership marks or merchandise, email us first.

Boilerplate: FND Connect provides clear, UK-focused information and practical support for people affected by Functional Neurological Disorder. Support, understanding and practical help for life with FND. Website: https://fndconnect.org.uk.