Printable · take to clinic

FND appointment pack

A short, shareable page for people with Functional Neurological Disorder — and for the clinicians supporting them. Print it, email it, or open it together in the room.

One-minute summary

What is FND?

A short definition

Functional Neurological Disorder (FND) is a genuine neurological condition. The nervous system has a problem with function — how the brain and body send and process signals — even when standard scans may look normal.

Symptoms are real. They are not “made up”, attention-seeking, or “just anxiety”.

Why this matters in clinic

FND can include seizures, weakness, movement symptoms, sensory changes, speech difficulties, cognitive fog and fatigue. Symptoms often fluctuate — a good hour does not mean capacity is unlimited.

Clear explanation, belief, and a practical plan reduce fear and help people engage with care.

For the appointment

Questions that often help

Pick a few — you do not need to cover everything in one visit.

  1. 1

    What is my working diagnosis, and what does that mean for me?

    Ask for plain English. “Functional” does not mean imaginary.

  2. 2

    What should I do if symptoms escalate or look different from usual?

    Agree a safety plan: when to use 999 / 111, and when a familiar pattern can be managed as FND.

  3. 3

    What treatment or rehabilitation options are available here?

    Physio, OT, psychology, specialist FND pathways, pacing and education — ask what is local and realistic.

  4. 4

    How should I record symptoms for follow-up?

    Frequency, duration, triggers, recovery time, medication, and impact on work or care. Structured tools can help.

  5. 5

    What should my employer, school or carer know?

    Functional impact and adjustments matter more than medical jargon alone.

Bring a clearer picture

What to prepare

Symptom snapshot

Main symptoms, when they started, what helps, what makes them worse, and how long recovery takes after a flare.

Impact on life

Work, school, driving, self-care, falls risk, sleep, and support needed on bad days — not only “good day” function.

Structured log (optional)

SeizeControl can help build appointment-ready records of episodes, symptoms and patterns.

For clinicians

Share this pack with patients

fndconnect.org.uk/appointment-pack/ — short, free, UK-focused, and designed to sit beside clinical care rather than replace it.