Learn · First 48 hours

Living with FND? Start here.

If you have just been diagnosed, think you may have FND, or care for someone who does — this is the calm path through the noise. Free, plain English, UK-focused.

Build your next-steps plan Appointment pack What is FND? Set up SeizeControl Together as One

A short path

Eight steps that actually help

You do not need to read the whole website. Work through these in order when you have energy.

1

Understand what FND is — and isn’t

Why normal scans do not mean “nothing is wrong”, and why symptoms are real.
2

Stop the “am I faking it?” spiral

Fluctuating symptoms and disbelief are common. You are not imagining this.
3

Name what you are feeling in the Symptom Library

Clinical titles with lived-experience subtitles — weakness, seizures, fog, fatigue and more — when you have energy to browse.
4

Take the appointment pack to clinic

A short printable summary, safety note and questions to ask — useful for you and your clinician.
5

Build a personal next-steps plan

Pick your situation, get a focused printable plan for appointments, support and safety.
6

Know flare vs emergency

A safety-first guide so familiar patterns and new danger signs are not confused.
7

Track what changes (optional)

Use SeizeControl when seizures, blackouts or flares need a reliable daily record for clinicians.
8

Find people who get it

Together as One on Discord, local groups, and Friday coffee mornings — community without pressure.

Pick your path

Who is this for right now?

Jump to the guides that match your situation.

I have FND I was just diagnosed

Language, safety, next steps and how to talk about it without shame.

What is FND? → I care for someone Partner, parent or friend

Empathy tools, pacing language and support that does not centre you as the problem.

Carers guide → I work with FND Clinician or service

Directory, research portal and training for schools, carers and employers.

Clinician home →

Field guides

Packaged topic hubs

Skip the scroll. Each hub bundles the best guides and tools for one real-life problem.

Topic hub FND and work

Reasonable adjustments, sick leave, Access to Work and fair careers when Functional Neurological Disorder affects employment.

Open hub → Topic hub FND and benefits

UK guidance on Attendance Allowance after State Pension age, Universal Credit work capability, PIP and ADP evidence, carers and mobility help when FND fluctuates.

Open hub → Topic hub Functional seizures and episode tracking

Functional seizures, safety, heat and sleep load, and how to keep a structured record without turning life into a panic diary.

Open hub → Topic hub For partners, parents and carers

Being a carer for someone with FND is hard work — even if you don’t have FND yourself. Real stories, support, and a welcome into our Discord carers channel.

Open hub → Topic hub FND, driving and DVLA

When Functional Neurological Disorder or functional seizures affect driving, DVLA notifications and practical mobility alternatives in the UK.

Open hub → Topic hub FND at school, college and university

Support across education with FND — language for teachers, pacing, exams, reasonable adjustments and Disabled Students' Allowance.

Open hub → Topic hub FND fatigue and brain fog

Pacing, symptom hangover, cognitive fog and day-to-day energy tactics when Functional Neurological Disorder empties the tank.

Open hub → Topic hub FND, relationships and intimacy

How FND changes closeness, friendship and intimacy — and how to stay connected without pretending everything is fine.

Open hub →

Looking for something else? Symptom Library · Support · Get involved · What do you need today?