Information, support and practical help
for Functional Neurological Disorder.

FND Connect is the UK’s trusted resource for clear information and tools. We are now a community interest company (CIC), set up to directly fund mobility aids, equipment and additional therapies that the NHS often cannot provide — practical support that changes lives.

Our charitable purpose

We are now a community interest company — FND Connect CIC. Our goal is to raise funds to help people with FND cover the cost of mobility aids, equipment and additional therapies that are not available or not fully funded by the NHS — practical support that makes a real difference.

Learn about our mission and how to support the work →
OUR CHARITABLE MISSION

Building practical support that the NHS cannot provide

Make a one-off donation through JustGiving, or support us on an ongoing basis at zero cost to you when participating retailers donate through easyfundraising.

Mobility & Independence

Funding wheelchairs, walking aids and home adaptations so people can stay safe and independent.

Specialist Therapies

Supporting access to advanced physiotherapy, occupational therapy and rehabilitation not routinely funded.

Assistive Technology

Communication aids, seizure detection and other tools that support daily safety and communication.

When to get urgent medical help

FND symptoms can look like other medical emergencies. If someone has new stroke-like symptoms, a first seizure, serious injury, chest pain, breathing difficulty, sudden severe headache, or symptoms that are very different from their usual pattern, call 999 or go to A&E. For urgent but non-emergency advice in the UK, use NHS 111.

Guided support

Not sure where to start?

Use the FND Connect next steps guide to create a focused plan for diagnosis, symptoms, treatment, appointments, support and safety planning.

Choose your situation Select the main issues Get a printable plan

FND Connect + SeizeControl

Learn what is happening. Track what changes. Review it with the right people.

FND Connect gives people the language, safety boundaries and support routes. SeizeControl turns day-to-day symptoms, episodes and context into a structured record that can support appointments, treatment conversations and safer planning.

1 Understand

Use FND Connect to separate familiar patterns from urgent symptoms and prepare better questions.

2 Track

Use SeizeControl when seizures, blackouts, flares or triggers need a reliable daily record.

3 Review

Bring the clearest timeline, context and summaries into clinical or support conversations.

Illustration of one person moving through a day with FND symptoms and rest

Interactive empathy experience

A Day Living With FND

Try a short, shareable experience that makes fluctuating symptoms, limited energy, cognitive overload, pacing and invisible effort easier for families, friends, employers and teachers to understand.

FND help, symptoms and treatment guidance

Short, plain-English pages for people newly diagnosed with Functional Neurological Disorder, people waiting for clearer answers, family members, carers and professionals who want a reliable starting point.

What is Functional Neurological Disorder?

What FND is, why normal scans do not mean “nothing is wrong”, and how diagnosis should be made from positive clinical signs.

Read more

FND symptoms and functional seizures

FND may involve weakness, tremor, functional seizures, sensory changes, speech issues, dizziness, fatigue, pain and cognitive symptoms.

Explore symptoms

FND treatment and rehabilitation

Learn how specialist physiotherapy, occupational therapy, psychological therapy, speech therapy and wider rehabilitation can fit together.

See treatment

Living with FND day to day

Practical ways to pace activity, explain FND, reduce flare impact, support carers, work with services and keep hold of identity after diagnosis.

Living advice

Newly diagnosed with FND?

A Functional Neurological Disorder diagnosis can bring grief, relief, uncertainty or all three at once. It can also create a practical route forward: better explanations, better referrals, better self-management and contact with people who understand.

Some people improve quickly once they understand what is happening and start the right rehabilitation. Some improve more slowly. Some continue to live with FND symptoms long term. The aim is not to pretend FND is easy; it is to make sure people are believed, informed and supported to reduce its impact wherever possible.

Live now

Win big, do good — our current raffles

Grab a ticket to win a great prize, or enter for free by post. Every entry helps fund FND Connect.

See all raffles →
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Win £100 Cash

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Living Well with FND Book

Living Well with FND Book
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Stylish Black Lightweight Folding Wheelchair

Stylish Black Lightweight Folding Wheelchair
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Win a £50 Amazon Voucher

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💙 100% of profits fund the FND community

Shop for a cause

Wear and share your support with FND Connect merchandise. Every item is made to order, and every penny of profit goes straight back into supporting people affected by FND.

Visit the shop →

Stories and reflections

Reader-friendly articles from people living with FND. See all on the blog →

Recovery and identity

"You Can Recover" — Hopeful, or Another Pressure on People With FND?

Hope matters. But when recovery is presented as an expectation rather than a possibility, people whose FND symptoms persist can be left feeling blamed, judged or as though they have failed treatment.

Read the guide →
Relationships and isolation

"Where Did Everyone Go?" — The Friendships FND Changes or Ends

FND does not only change bodies and routines. It can change who calls, who keeps inviting you, who believes you and which friendships are able to adapt when life becomes unpredictable.

Read the guide →
Practical health guidance

FND and the Dentist: Navigating Dental Care with Functional Neurological Disorder

Dental care can be particularly daunting when managing FND symptoms. Bright lights, loud drills, and vibrations can act as significant triggers. A practical guide to navigating dental appointments, fostering better communication, and advocating for reasonable adjustments for a safer and more comfortable experience.

Read the guide →
Travel and mobility

Can I Fly With FND? Air Travel, Pressure Triggers and Cabin Crew Letters

Flying with Functional Neurological Disorder is not a simple yes or no. The useful question is whether your current symptom pattern, pressure sensitivity, airport load and recovery plan make this journey manageable today.

Read the guide →

Powered by SeizeControl

FND Connect explains FND. SeizeControl helps manage it day to day.

SeizeControl is a structured tracking workspace for people who need clearer episode records, pattern review, medication context, wearable signals and appointment-ready summaries.

Built as a structured tracking tool rather than a simple lifestyle diary, SeizeControl supports episode logging, pattern review, forecasting, cycle and weather context, HealthKit imports, medication tracking and consultation summaries.

FND Connect Information, support and context

Plain-English FND information, support routes and lived-experience-aware guidance.

SeizeControl Tracking, review and daily use

Structured tracking that turns daily uncertainty into a reviewable record.

Support FND Connect

Help us build practical charitable support.

Make a one-off donation through JustGiving, or raise ongoing retailer-funded donations at zero cost to you when you shop through easyfundraising.

Support options

FND-specific charities and resources can help with information, peer support, signposting and advocacy. Start with the directory if you are looking for organisations outside your clinical team.

FND Action

UK charity offering FND information, support resources, awareness work and signposting.

Email: contact@fndaction.org.uk Web: fndaction.org.uk

FND Hope UK

Patient advocacy charity with education, events, peer support and UK support resources.

Email: fndhopeuk@fndhope.org Web: FND Hope UK

Neurosymptoms FND Guide

A detailed patient guide used widely by clinicians, with information by symptom type.