FND CONNECT CIC

Our impact on the FND community

We exist so people living with Functional Neurological Disorder — and the people who love them — can find clear information, practical tools, human connection, and funded help when the system falls short.

At a glance

Impact in numbers

A simple snapshot of funds raised, reach, and people we support.

Amount raised £1,294.18 Fundraising for the cause
Reach 192,028 Audience across our channels
People supported 2,051 Across our community and programmes
Grants issued £369.90 4 funded by us
Signposted 5 Referred to other funds · £2,803.99 need value
Value of support helped £3,173.89 Funded by us + signposted elsewhere · 9 people
Community

People, programmes and connection

Volunteers 26 Giving their time
Fundraisers 18 Campaigns and challenge
Local support groups 1 Across the community
Community members 687 Online and registered
Research contributors 185 Anonymised SeizeControl sharing
Training learners 6 Awareness courses
Published guides 39 Free to read

Figures updated 05 Aug 2026, 03:48.

Practical grants

Help delivered — need still growing

Funds Community need vs value of support we helped secure
Requested £10,587.39
Help secured £3,173.89
↳ Funded by us £369.90
↳ Signposted £2,803.99
People Who asked vs who we’ve supported
Applications 29
Helped 9
9 People helped
£3,173.89 £ value of support helped
£369.90 £ funded by us
5 Signposted to other funds
£2,803.99 £ value signposted (other funds)
29 Applications
£10,587.39 £ requested
17 Under review

Every donation helps us say yes more often.

What we do

How we support the FND community

Understand

Plain-English information, field guides and a calm path for people who are newly diagnosed or supporting someone who is.

Start here →

Connect

Local support groups, Discord community, volunteer programmes and training so nobody has to face FND alone.

Support groups →

Fund practical help

Raising money for mobility aids, equipment, additional therapies and community programmes the NHS cannot always fully provide.

Donate →
What your support funds

Where help is directed

Funds raised for FND CONNECT CIC are applied to practical support and free public resources for people affected by FND.

Mobility aids

Wheelchairs, walkers and short-term aids when symptoms suddenly limit independence.

Therapies and equipment

Support towards additional therapies and essential equipment waiting lists leave people without.

Free public information

Keeping guides, training pathways and community tools free so cost is not a barrier to understanding FND.

Outreach and local groups

Venues, materials and systems that help volunteer-led support groups run safely and consistently.

Find groups →

About these figures

High-level totals only — funds raised for the cause, audience reach, people we support, and the volume of grant requests that shows how much practical help is needed. They are not a full statutory account; detailed ledgers stay internal. Grant awards are discretionary and limited by available funds.

If you would like to share an anonymised story of practical support, contact [email protected].

See also Governance & policies and Our charitable work.