Living with FND and CHRONIC FATIGUE

I had my one and only covid vaccine in May 2021.
Thought nothing of it really, from people's experiences I was expecting to feel slightly off for a couple of weeks.
Weeks turned into month, months have turned into 5 years 4 months and unfortunately still counting.
I have been diagnosed with FND amd Chronic Fatigue Syndrome.
I do try and be positive, I do try and be as active as possible..however the trying has major setbacks and reprocussions.
Initially after my vaccine I tried doing sudoku books to help my brain function better. Felt it helped but again that took concentration and effort..ultimately leading to spending even more time in bed.
Main function issues are brain fog, balance issues....head tremors, titinus...yea, 5 years on its a dark place to be...but I try.
I think for me it's finding a support network....doctors, specialists, I get nothing back.
Bloods, fine.....MRi, fine, CT scams, fine.
Although of course I don't want anything to show that is wrong with me, I want answers as to why I'm like this way.
Anything can trigger me from having an average getting by day to wow, iv been struck...uh oh....bed, rest and quiet time is required.
Again though, very difficult with children, cats and dogs in the house.

The day to day journey is a struggle tbf. From when I awake I'm exhausted, heavy headed and when I do step out of bed I'm extremely wobbly amd far from functioning.
It's tough not only for me, but also the children. I feel guilty as they can't be the children the probably wish to be.
I require a quiet home due to my symptoms ajd it pains me that my health impacts others, partner especially.
I haven't been able to work for the past 5nyears, I did attempt to work....finance over the phone...but again as it intails thinking outside of the box that caused my head to explode with neurological issues. It's difficult because ultimately I'm still trying to fight it, however..these years have taught me that fighting it is only making it worse.
Initial doctors note I recieved back in 2021, he wrote the word "tired" in the explanation box of why I cannot attend work.....cheers then, clearly uneducated on the symptoms I have explained.
It's tough as it's an invisible injury....if it was a limb or something then visually it would be acceptable...because its invisible, within my bulb...I have been through stages of trying to not only convince friends, doctors...but also family that this is 100% real and not budging.....I shouldn't have too convince someone, frankly I shouldn't care less....but I do....I feel guilty...

Over time I have become more andore frustrated with everything. Spend the majority of time in the house as everything is a chore and completely drains me..

Medication, tried everything thrown my way...but again...it does nothing.

I guess in conclusion, make the most of the days where I feel I can do something....but expect reprocussions as they are always just round the corner.

I think if you can accept how your body has reacted and allow it rather than fight it then that is a good start. Spent alot of time thinking when am I going to be back to my old self....hard as it is, I have accepted this is probably me.
Although I use to be extremely active, being able to put the bins out every other Thursday, picking up the dog mess and feeding the cats I deem as a successful day.
I listen to calming music at times, just to take myself away in my mind....steady breathing as my heart rate does fluxtuate.