FND Story I live with FND Anonymous

FND survivors

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Shared with this story · Anonymous
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When it started

I was diagnosed with FND about 6weeks ago and this was definitely life changing And not knowing what this diagnosis is and learning a different way of coping your daily life.

What it’s like

I have written a diary of each day and each system for me to learn and understand what my body is telling me it’s challenging some days but it does get easier the more support u have the more u can understand myself. I struggle with my walking and have a drop foot my vision is blurry at times and I suffer with migraines most days.I have tremors everyday and can feel quite sick before this happens I do have some ticks and Tourette’s too.my speech becomes slow and I feel dizzy and off balance most days.And brain fog and pain all over my body.pins needles.but it definitely gets easier as u understand when u need to sit down and rest.The days does get easier as you learn how to cope what is easier for yourself as the simplest of things like I never thought I would learn to walk or talk again.But I won’t give up as full recovery can be possible and their is support out their and more people with FND too and who are willing to share their story too.It does feel some days lonely as it’s remembering the things that were so simple but yet so hard like having a shower can be so exhausting and not able to do things you used to but in time u will adapt to your own of coping and believing I can do this and so can u too.

What helps

I feel a diary of your feeling and symptoms as everyday is so different and Iv learnt so far to not panic when u have any overwhelming symptoms and breath slowly it helps too.believe u can do this too.

A message for others

This is a life changing illness but it time their is the light at the end of the tunnel even though u don’t see it yet you will always find your way and listen to your body on what it is telling you.

Thank you for reading

Anonymous

I live with FND · Published 28 Aug 2026, 11:41

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