My journey with fnd

Fnd started for me 3 years ago after returning from holiday. I had my first seizure while in the car. We got home I could hardly move and had 3 more seizures which resulted in me passing out and ambulance was called. I ended up spending 10 days in hospital to be handed piece of paper with non epileptic attack disorder. This basically started the ball rolling to being diagnosed with fnd a year later after muscle locks , speech issues and up to 60 seizures a day. I often felt alone.

3 years on with fnd diagnosis I have good days and bad days. Seizures are still very much a part of my life. On good days I may have one or two seizures but on bad days it feels like I'm constantly in them. Other symptoms vary day to day but can include poor mobility where my muscles lock and tighten. It can look like I'm walking like robot or my hands will lock in weird positions. It also affects speech , my sleep , my mental health and so much more. Before all of this I've worked in care homes and special needs teaching assistant however, that part of my life is on pause till I can hopefully get my symptoms under control.

I have found through gaining support from friends and family that I can still integrate into the world and that I'm not alone. Fnd connect has made such an impact on this and has provided me with so many tips and tricks to make improvements to my life.