Life changed, but I’m still me

Living with FND can be unpredictable. Some days I can manage more, while other days even basic things can feel difficult. My symptoms affect my mobility, cause weakness, numbness, pain and fatigue, and I also experience non-epileptic attacks where I can become unresponsive.

I use a walking stick and sometimes a wheelchair, especially when I’m out. One of the hardest parts is never really knowing what kind of day my body is going to give me. Things I once did without thinking can now take planning, support or much more energy.

FND has changed a lot about my life and my independence, but it hasn’t changed who I am. I’m still me, just learning how to live alongside a condition I never expected to have.

I’m still learning what helps me, but pacing myself and listening to my body are really important. I use mobility aids when I need them rather than pushing myself beyond what I can manage, and having support from people who understand makes a big difference.

Rest, taking things at my own pace and adapting how I do everyday tasks helps me stay as independent as possible. Connecting with other people who live with FND has also helped me feel less alone and reminded me that it’s okay to have good days and difficult days. I’m still learning what helps me, but pacing myself and listening to my body are really important. I use mobility aids when I need them rather than pushing myself beyond what I can manage, and having support from people who understand makes a big difference.

Rest, taking things at my own pace and adapting how I do everyday tasks helps me stay as independent as possible. Connecting with other people who live with FND has also helped me feel less alone and reminded me that it’s okay to have good days and difficult days.