FND Story I live with FND

Fnd warrior

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Shared with this story · John
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When it started

Started after Covid revived injection booster (2021)
Then developed low b12 level went on pill format till (2025) as condition deteriorated and more symptoms got b12 booster course (jan2025) as dropped 220 to 80
Then range symptoms started above b12

What it’s like

As fnd is illness that not well covered hard sometimes people see but things start badly in early 2026 as lose balance and foot drop start make me think something not right then over next few weeks things worse and worse pins and needles in arms and eye twicking, weakness in legs wide spread pain drop things out hands etc then was referred hospital did various tests and all came clear that’s when was fnd unfortunately.

What helps

Try keep routine but hard as off work but try’s program brain also find colouring really helps too.

A message for others

If start feel body not right get bloods and other tests done as if caught early might be okay unfortunately don’t think me but aftercare fnd pathway which every gp should put u on

Thank you for reading

John

I live with FND · Published 27 Jul 2026, 18:04

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