When it started
It all started 18 years ago after a very bad water infection which I drank pop instead of water got dehydrated and had an allergic reaction to the medication they gave me I ended up in hospital n that’s when the ball started rolling in getting diagnosed mri scans eeg brain scans blood tests took 4 years to get a neurologist who told me I had n e a d non epileptic attack disorder I saw a psychologist stared cbt but over the years nothing has worked
What it’s like
Day to day it’s hard working is the main problem when I’m at work my brain can’t cope has I’m doing 10 different things at once which triggers seizures I can seize up to 50 times at work when not at work I still have them but not has much
What helps
I’ve tried everything over the years grounding to counting to distraction nothing works for me I fight everyday to stay in work but it’s getting harder n harder to stay positive
A message for others
Don’t panic if u see me seize I will convulse but don’t panic I will be ok and come around when I’m ready I get cluster seizures so they can last from 10 mins to an hour or more it does get easier I’ve learnt to ride with it let them come n recover
Thank you for reading
Nicola Hitchings
