Hull Community Group (Pilot)

Hi, I'm Matthew, the founder of FND Connect.

While I don't personally live with Functional Neurological Disorder, FND has become a huge part of my life. My lived experience comes from supporting my fiancée and my 16 year old stepdaughter, who both live with FND. I've seen first-hand the challenges they face every day, from navigating symptoms and healthcare, to dealing with misunderstanding and the emotional impact the condition can have on the whole family.

Watching them go through that journey made me realise just how difficult it can be to find reliable information, practical support, and a community that truly understands. That's why I founded FND Connect. I wanted to build the kind of organisation we wished had existed when our journey began.

As your Meeting Coordinator, my aim is to create a welcoming, respectful, and supportive environment where everyone feels comfortable sharing their experiences, asking questions, and connecting with others who understand life with FND. Whether you're living with FND yourself, supporting a loved one, or simply looking for guidance, you're always welcome here.

I firmly believe that no one should have to face FND alone. Every conversation, every connection, and every shared experience helps build a stronger, more supportive community, and I'm proud to be part of that journey with you.