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Fnd community support

Led by Jamie-lee Ramsey, raising money for FND CONNECT CIC.

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Fnd community support challenge
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The story behind the challenge

Why this matters

I was fainting all the time the doctors thought it was hypotension then they told me it could be pots but didn't do the tests to confirm if it is pots my fainting was happening for 2 years I was passing out in the streets at home I was taken to hospital for fainting and for injuries to my legs arms head injuries and concussion for years I was feeling so anxious to go out as I don't always get warning of a fainting spell coming I was feeling anxious fed up ignored like nobody was listening to me when I said i need to be tested for pots as I can't keep fainting the way I was I felt ignored anxious fed up and wanted to lock myself at home I wasn't as social as before I stayed at home all the time it took slightly over 2 years off all of this before my GP diagnosed me with fnd and I finally felt like I was getting somewhere I had a diagnosis and I could finally get the help I needed and get back to being the old me I am now on blood pressure tablets to help me with my blood pressure which affects my fnd I have found a fnd community that has helped me pace and vent and feel less alone like I'm not doing this on my own I have learnt my triggers and how to pace and I'm finally back to the old me and I have been going out a little bit more as well on the bad days with fnd I just rest but I don't let it defeat me I have fnd bit it does not define who I am and I will keep fighting it I will not let fnd define who I am and stop me living my life I am more cautious and have restrictions but I'm still doing all the things i love seeing friends and family going to the park or cinema going out for lunch fnd is a illness but it is not going to stop me and I want to help others with fnd to know there not alone and to keep going no matter how many times fnd knocks you down the important thing is getting up dusting yourself off and keep going learning to manage symptoms and triggers and knowing that your not alone oj your fnd journey

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Money raised supports FND Connect's work: clearer information, practical digital tools and stronger community connection for people affected by Functional Neurological Disorder.

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Fnd community support — fundraiser for FND Connect

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I was fainting all the time the doctors thought it was hypotension then they told me it could be pots but didn't do the tests to confirm if it is pots my fainting was happening fo… Donate or share to…

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