Lived experience as partnership
Patient and public involvement
Facilitate meaningful lived-experience perspectives. People with FND should help shape relevant work, not only supply data.
Purpose
Help researchers and healthcare organisations incorporate meaningful lived-experience perspectives into projects and services.
Who this is for
Research teams, service designers, PPI leads and organisations reviewing patient information.
What FND Connect can provide
- Patient advisory discussions
- Research priority-setting
- Feedback on patient information
- Usability testing
- Consultation on proposed services
- Accessible research materials
- Structured lived-experience workshops
How it works
Describe the activity and how contributors will be supported. Participation is voluntary and opt-in. Recruitment arrangements are independently reviewed.
Requirements and boundaries
This is not unrestricted access to FND Connect members. Where appropriate, research partners should budget for contributors’ time, reasonable adjustments and expenses.