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FND Connect
Patient information leaflet
Free · Printable · UK
Patient leaflet · Full A4 page

Preparing for your FND appointment

Short appointments move faster when you arrive with a clear snapshot. Use this page before a GP, neurology, A&E follow-up, or rehab visit.

Bring a one-page snapshot

  • Top 3 symptoms right now (and roughly when each started)
  • What a bad day looks like vs a better day (function, not just pain scores)
  • What helps / what makes things worse (sleep, stress, heat, activity, sensory load)
  • Impact: work, school, driving, self-care, falls, sleep, carers, mood
  • Current medications, allergies, and other diagnoses
  • Questions you must get answered today (circle your top 2)

Questions many people ask

About the diagnosis

  • What is my working diagnosis in plain English?
  • What positive signs support FND here?
  • What has been ruled out — and what would change that?
  • Can I have this in writing for work/school?

About the plan

  • When should I use 999 / 111 vs manage a familiar pattern?
  • What rehab or therapy is available here?
  • How should I record symptoms for follow-up?
  • What should work/school know about adjustments?

Optional tools

A structured log (for example SeizeControl on FND Connect) can show frequency, duration and recovery — useful when symptoms are hard to describe in ten minutes. Bring screenshots or a printed summary if that helps.

Safety

If symptoms are new, sudden, severe, stroke-like, a first seizure, chest pain, or very different from your usual pattern, call 999 or use NHS 111. Do not assume it is “just FND”.