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FND Connect
Patient information leaflet
Free · Printable · UK
Patient leaflet · Full A4 page

FND, fatigue and pacing

Fatigue with FND is often more than “being tired”. Cognitive load, pain, seizures, sleep disruption and nervous-system effort can all drain capacity. This sheet explains pacing in everyday language.

What people often notice

  • Crash after a busy day or social event (delayed payback)
  • Brain fog when multitasking or under fluorescent lights/noise
  • Needing longer recovery after appointments or travel
  • Looking “OK” while feeling exhausted inside

Boom-and-bust vs pacing

Boom-and-bust

  • Push hard on a good day
  • Crash for days after
  • Guilt → push harder again
  • Unpredictable for work/school

Pacing idea

  • Steady, planned activity
  • Breaks before the crash
  • Stop while you still have a little left
  • Adjust plans on flare days without shame

Practical starting points

Pick 1–2 priorities per day. Schedule rest like an appointment. Reduce unnecessary decisions. Protect sleep. Tell one trusted person your pacing plan so they can support it rather than push past it.

  • Ask rehab teams about graded activity appropriate for FND (not one-size-fits-all)
  • Track what triggers crashes for a week — patterns help appointments

Safety first

If symptoms are new, sudden, severe, stroke-like, a first seizure, chest pain, or very different from your usual pattern, call 999 or use NHS 111. Do not assume it is “just FND”.